Your loved one, especially after years of living with diabetes, may experience distress or burnout. The signs and symptoms of distress and burnout may not be obvious or they may look like depression. However, they are very distinct from one another, and the presence of distress or burnout does not necessarily mean there is depression.
Both make it more difficult for your loved one to manage their diabetes and maintain adequate self-care. To provide appropriate and personalized treatment, providers should make the clinical distinction between distress, burnout, and depression before planning care. If you have concerns about any of these conditions, accompany your loved one to an appointment with their provider to discuss what you're seeing.
What is diabetes distress?
Managing diabetes involves significant effort by your loved one every day, every week, every month, every year, year after year. They may reach a point where they are exhausted, frustrated, or even angry because, despite their best efforts, they may not get the desired results and may develop health problems related to diabetes despite their hard work.
They feel overwhelmed by the neverending management of diabetes. This upset is diabetes distress.
What is diabetes burnout?
When diabetes distress persists for long enough, your loved one may slip into unhealthy habits, even after years of good management. Habits like no longer checking their blood sugar, avoiding appointments, making frequent unhealthy food choices, and having no motivation to make changes. This is diabetes burnout.
How are these different from depression?
Diabetes distress and burnout are acute and transient. In other words, they come and go, are usually short-lived, and can be somewhat difficult to resolve. Depression is chronic, persisting for long periods, or constantly recurring, and is hard to resolve.
Diabetes distress and burnout are typically situational. They often come on when a person with diabetes is experiencing unrelated stress, like a major home repair, financial setback, an injury, or family problems. It is during these times of additional stress that diabetes management becomes especially inconvenient and frustrating. As the situation resolves, distress and burnout frequently follow suit.
Depression, however, sets in and remains over time. While we often attempt to attribute depression to a situation (death of a loved one, moving out of the home, chronic disease diagnosis), we know that depression is a more complex condition that has no single cause. Depression does not seem to resolve when situational stress decreases or with time and distance from the events thought to cause it.
There are also various types of depression, based on duration, intensity, and level of disruption to daily functions.
Diabetes distress and burnout are very real and need to be addressed, though they are not considered medical illnesses. Depression, on the other hand, is a medical illness that affects how your loved one feels, the way they think, and how they act. Not just about one aspect of their lives at any given time, but rather all aspects of their lives at all times.
Depression is considered a medical illness because known chemical changes are occurring in the brain and body that create feelings of despair, drive loss of interest, and disrupt important daily functions like sleep, appetite, and mental processes. This creates a cycle that persists until it is broken. People can't simply decide to "snap out of it."
Can both be present?
Absolutely. Diabetes distress or burnout can be layered onto existing depression. This is why it is so important to have a provider work with your loved one. Do not attempt to diagnose and treat your loved one yourself. Depression is a medical diagnosis, with a determined set of criteria that the provider will use to evaluate them. Once the issues are identified, the provider will be able to work with your loved one to develop a customized care plan for addressing what's present.